PATIENT DATA SHARING – ARE WE RUNNING OUT OF PATIENCE?

The question of the extent to which those working within the national health service should have access to patient data is a difficult one to resolve. On the one hand, permitting widespread access can potentially enable health service provides to provide more efficient, ‘joined up’ health-care to patients. On the other hand, there will always be concerns that too much access increases the risk that patient data, which is obviously sensitive personal data for the purposes of s. 2 of the Data Protection Act 1998, will be misused and/or inadvertently disclosed to third parties. We have seen this debate unfolding not least in respect of the Spine database project which is aimed at achieving a comprehensive centralised database of NHS patient records. The British Medical Association amongst others have alreeady expressed concern that the system is being rolled out too quickly (see further this article from the Guardian earlier this month). Today, reports are surfacing in the media that an NHS Trust in Wales is failing to ensure that proper restrictions are being placed on hospital staff accessing patient data (see further this BBC article which suggests hospital porters, IT staff and administrators have all been permitted access to patient data). This kind of story is only going to fuel concerns that the quest for efficiency in patient treatment requires too high a price to be paid in terms of compromising the privacy rights of patients.